Paper Details

  1. Home
  2. Paper Details

'I'd like to know what causes it, you know, anything I've done?' Are we meeting the information and support needs of patients with macular degeneration? A qualitative study.

Author: BurtonA E, GibsonJ M, ShawR L

Journal ArticleAn article published in an academic or professional journal that reports original research or scholarly analysis.

Overview

Patients with age-related macular degeneration (AMD) experienced significant information deficits before, during, and after diagnosis, limiting their ability to self-advocate and access necessary support.
Paper Details　
Original Abstract of the Article :
OBJECTIVE: To examine patients' experiences of information and support provision for age-related macular degeneration (AMD) in the UK. STUDY DESIGN: Exploratory qualitative study investigating patient experiences of healthcare consultations and living with AMD over 18 months. SETTING: Specialist e...See full text at original site
Dr.Camel IconDr.Camel's Paper Summary Blogラクダ博士について

ラクダ博士は、Health Journal が論文の内容を分かりやすく解説するために作成した架空のキャラクターです。
難解な医学論文を、専門知識のない方にも理解しやすいように、噛み砕いて説明することを目指しています。

* ラクダ博士による解説は、あくまで論文の要点をまとめたものであり、原論文の完全な代替となるものではありません。詳細な内容については、必ず原論文をご参照ください。
* ラクダ博士は架空のキャラクターであり、実際の医学研究者や医療従事者とは一切関係がありません。
* 解説の内容は Health Journal が独自に解釈・作成したものであり、原論文の著者または出版社の見解を反映するものではありません。


引用元：
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3822314/

データ提供：米国国立医学図書館（NLM）

Meeting the Information and Support Needs of Macular Degeneration Patients

Living with macular degeneration (AMD) can be challenging, both physically and emotionally. It's like navigating a desert, where vision gradually fades, and the landscape becomes unfamiliar. This study explores the experiences of AMD patients in the UK, investigating their information and support needs throughout their journey with this condition.

Information and Support Needs: A Crucial Aspect of AMD Management

The study findings highlight significant information deficits among AMD patients. It's like a desert traveler without a compass, uncertain about the path forward. Patients often felt ill-informed and unable to advocate for themselves, emphasizing the need for improved communication and support.

Navigating the Desert of Macular Degeneration: Providing Information and Support

This research underscores the importance of providing clear and accessible information to AMD patients. It's like providing a map and compass to a desert traveler, guiding them through the challenges of their journey. By understanding the information needs of AMD patients, healthcare professionals can better support them in managing their condition.

Dr. Camel's Conclusion

This study sheds light on the need for better information and support for AMD patients, who are like desert travelers navigating a challenging landscape. By providing the right resources, we can empower patients to manage their condition effectively and live fulfilling lives.
Date :
  1. Date Completed 2013-11-08
  2. Date Revised 2021-10-21
Further Info :

Pubmed ID

24202055

DOI: Digital Object Identifier

PMC3822314

Related Literature

Article Analysis
・Causes of macular degeneration
SNS
PICO Info
in preparation
Languages

English

Positive IndicatorAn AI analysis index that serves as a benchmark for how positive the results of the study are. Note that it is a benchmark and requires careful interpretation and consideration of different perspectives.

This site uses cookies. Visit our privacy policy page or click the link in any footer for more information and to change your preferences.