Long-term follow-up of telehealth-enabled behavioral treatment for challenging behaviors in boys with fragile X syndrome.

Author: HallScott S, JoBooil, PollardJoy S, RodriguezArlette Bujanda

Paper Details 
Original Abstract of the Article :
A significant proportion of boys with fragile X syndrome (FXS), the most common known genetic cause of intellectual disability, exhibit challenging behaviors such as aggression and self-injury that can cause significant distress to families. Recent evidence suggests that coaching caregivers to imple...See full text at original site
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引用元:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9523179/

データ提供:米国国立医学図書館(NLM)

Telehealth-Enabled Behavioral Treatment for Fragile X Syndrome: A Virtual Oasis

The field of developmental disability is constantly seeking innovative approaches to support individuals with unique challenges. This study focuses on boys with fragile X syndrome (FXS), exploring the potential of telehealth-enabled behavioral therapy to address challenging behaviors. Like a skilled desert guide, the researchers utilize telehealth technology to connect families with expert support, enabling them to implement functional communication training (FCT) for their children. This study explores the long-term effects of this virtual intervention, offering insights into the potential of telehealth to improve the lives of individuals with FXS and their families.

Telehealth-Enabled FCT: A Virtual Oasis of Support

This study provides further evidence supporting the effectiveness of telehealth-enabled FCT in mitigating challenging behaviors in boys with FXS. The long-term follow-up data suggest that this intervention can provide sustained benefits for both the individuals with FXS and their families. This virtual approach offers a valuable resource for families facing these challenges, extending the reach of specialized care and support beyond geographical limitations.

Navigating the Challenges of Fragile X Syndrome with Telehealth

For families navigating the challenges of FXS, telehealth-enabled behavioral therapy provides a valuable tool for accessing expert support and intervention. This virtual approach offers a convenient and accessible way to connect with professionals and implement evidence-based treatment strategies. Remember, seeking support and guidance from qualified professionals is crucial for navigating the complex landscape of FXS and empowering individuals with the tools to thrive.

Dr. Camel's Conclusion

This study is a testament to the transformative power of technology in healthcare. Telehealth-enabled FCT provides a virtual oasis of support for families facing the challenges of FXS, bridging geographical barriers and providing access to specialized care. This innovative approach is like a caravan of knowledge traversing the desert, bringing hope and support to those in need. Remember, the journey through FXS is often challenging, but with the right support, individuals and families can find strength and resilience to navigate this path.

Date :
  1. Date Completed 2022-10-04
  2. Date Revised 2022-12-04
Further Info :

Pubmed ID

36180840

DOI: Digital Object Identifier

PMC9523179

Related Literature

SNS
PICO Info
in preparation
Languages

English

Positive IndicatorAn AI analysis index that serves as a benchmark for how positive the results of the study are. Note that it is a benchmark and requires careful interpretation and consideration of different perspectives.

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