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Parents' Experience of Administering Vosoritide: A Daily Injectable for Children with Achondroplasia.

Author: ArgentRob, BaujatGenevieve, ButlerKaren, Cormier-DaireValerie, MohnikeKlaus, NiMhurchadhaSinead, PalmKatja

Journal ArticleAn article published in an academic or professional journal that reports original research or scholarly analysis.
Research Support, Non-U.S. Gov'tResearch funding provided by government agencies outside the United States.

Overview

This study found that parents and children are resilient to challenges posed by a daily injectable treatment for achondroplasia and highly motivated to improve their quality of life. They are prepared to overcome short-term treatment challenges for future gains in terms of health and functional independence for their children.
Paper Details　
Original Abstract of the Article :
INTRODUCTION: Vosoritide is the first approved pharmacological treatment for achondroplasia and is indicated for at-home injectable administration by a trained caregiver. This research aimed to explore parents' and children's experience of initiating vosoritide and administering this treatment at ho...See full text at original site
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引用元：
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10129947/

データ提供：米国国立医学図書館（NLM）

Vosoritide: A New Oasis in the Desert of Achondroplasia

This study explores the experience of parents administering vosoritide, a new treatment for achondroplasia, to their children. It's like navigating a desert of uncertainty for parents of children with this rare genetic condition, searching for solutions to improve their child's health and well-being.

Vosoritide: A New Path Through the Desert

The study highlights the challenges and triumphs of parents who have embraced this new treatment. It's like a camel caravan venturing into uncharted territory, encountering both obstacles and opportunities along the way. Parents in this study demonstrated resilience and unwavering support for their children, seeking to improve their quality of life.

Achondroplasia: A Journey Towards Greater Independence

This study offers hope for families affected by achondroplasia. It showcases the power of new treatments and the dedication of parents in seeking a brighter future for their children. It's a reminder that even in the face of challenges, there is always hope for progress and a better tomorrow.

Dr.Camel's Conclusion

This research provides a glimpse into the personal journeys of families dealing with achondroplasia. Vosoritide emerges as a beacon of hope, offering a potential path towards improved health and greater independence for children affected by this condition. It's a testament to the unwavering love and dedication of parents who are willing to cross any desert to provide the best possible care for their children.

Date :
  1. Date Completed 2023-05-17
  2. Date Revised 2023-08-22
Further Info :

Pubmed ID

37017912

DOI: Digital Object Identifier

PMC10129947

SNS
PICO Info
in preparation
Languages

English

Positive IndicatorAn AI analysis index that serves as a benchmark for how positive the results of the study are. Note that it is a benchmark and requires careful interpretation and consideration of different perspectives.

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