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Patient engagement and study design of PROP UP: A multi-site patient-centered prospective observational study of patients undergoing hepatitis C treatment.
Author: AlstonShani, Di BisceglieAdrian M, EvonDonna M, FriedMichael W, GolinCarol E, LimJoseph K, LokAnna S, NelsonDavid R, ReauNancy, ReddyK R, ReeveBryce, SarkarSouvik, SterlingRichard K, StewartPaul
Original Abstract of the Article :
BACKGROUND: New highly efficacious direct-acting antiviral (DAA) therapies are available to treat chronic hepatitis C viral (HCV) infection. Real-world, patient-centered data on harms and benefits associated with these therapies are needed. METHODS: PROP UP is a multi-center prospective observation...See full text at original site
Dr.Camel's Paper Summary Blogラクダ博士について
ラクダ博士は、Health Journal が論文の内容を分かりやすく解説するために作成した架空のキャラクターです。
難解な医学論文を、専門知識のない方にも理解しやすいように、噛み砕いて説明することを目指しています。
* ラクダ博士による解説は、あくまで論文の要点をまとめたものであり、原論文の完全な代替となるものではありません。詳細な内容については、必ず原論文をご参照ください。
* ラクダ博士は架空のキャラクターであり、実際の医学研究者や医療従事者とは一切関係がありません。
* 解説の内容は Health Journal が独自に解釈・作成したものであり、原論文の著者または出版社の見解を反映するものではありません。
引用元:
https://pubmed.ncbi.nlm.nih.gov/28342989
データ提供:米国国立医学図書館(NLM)
PROP UP: A Patient-Centered Study of Hepatitis C Treatment
The world of hepatitis C treatment is evolving rapidly, with new, highly effective therapies emerging like blooming desert flowers. PROP UP, a multi-center observational study, is a unique caravan, traversing the landscape of patient-centered research, to understand the real-world experience of individuals undergoing treatment with these new medications.
This study, like a careful excavation of ancient ruins, delves into the patient perspective, collecting valuable data on the benefits and potential harms of these therapies. The study design, guided by a patient engagement group, prioritizes the outcomes that matter most to those living with hepatitis C, ensuring the research stays true to the needs of the people it seeks to serve.
PROP UP: Empowering Patients with Knowledge
This study, a testament to the power of collaboration between researchers and patients, aims to provide a comprehensive understanding of the real-world experience of hepatitis C treatment. The results will be like a map, guiding patients and healthcare providers towards more informed and personalized treatment decisions.
Living with Hepatitis C: A Journey of Hope and Resilience
For those journeying through the landscape of hepatitis C, this study offers a valuable resource. PROP UP, like a well-stocked oasis, provides a haven of knowledge and empowers individuals to make informed decisions about their care. Remember, the journey is not always easy, but with access to reliable information and supportive care, you can navigate the path towards a healthier future.
Dr. Camel's Conclusion
PROP UP is a vital addition to the growing body of research on hepatitis C treatment. Its unique focus on patient-reported outcomes, coupled with its strong patient engagement component, will provide valuable insights into the real-world impact of these new therapies. This study serves as a reminder that in the grand desert of medical research, the voices of those directly affected by a condition are invaluable and must be included in the quest for improved care.
Date :
- Date Completed 2018-03-07
- Date Revised 2022-03-18
Further Info :
English
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