Patient engagement and study design of PROP UP: A multi-site patient-centered prospective observational study of patients undergoing hepatitis C treatment.

Author: AlstonShani, Di BisceglieAdrian M, EvonDonna M, FriedMichael W, GolinCarol E, LimJoseph K, LokAnna S, NelsonDavid R, ReauNancy, ReddyK R, ReeveBryce, SarkarSouvik, SterlingRichard K, StewartPaul

Paper Details 
Original Abstract of the Article :
BACKGROUND: New highly efficacious direct-acting antiviral (DAA) therapies are available to treat chronic hepatitis C viral (HCV) infection. Real-world, patient-centered data on harms and benefits associated with these therapies are needed. METHODS: PROP UP is a multi-center prospective observation...See full text at original site
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引用元:
https://pubmed.ncbi.nlm.nih.gov/28342989

データ提供:米国国立医学図書館(NLM)

PROP UP: A Patient-Centered Study of Hepatitis C Treatment

The world of hepatitis C treatment is evolving rapidly, with new, highly effective therapies emerging like blooming desert flowers. PROP UP, a multi-center observational study, is a unique caravan, traversing the landscape of patient-centered research, to understand the real-world experience of individuals undergoing treatment with these new medications.

This study, like a careful excavation of ancient ruins, delves into the patient perspective, collecting valuable data on the benefits and potential harms of these therapies. The study design, guided by a patient engagement group, prioritizes the outcomes that matter most to those living with hepatitis C, ensuring the research stays true to the needs of the people it seeks to serve.

PROP UP: Empowering Patients with Knowledge

This study, a testament to the power of collaboration between researchers and patients, aims to provide a comprehensive understanding of the real-world experience of hepatitis C treatment. The results will be like a map, guiding patients and healthcare providers towards more informed and personalized treatment decisions.

Living with Hepatitis C: A Journey of Hope and Resilience

For those journeying through the landscape of hepatitis C, this study offers a valuable resource. PROP UP, like a well-stocked oasis, provides a haven of knowledge and empowers individuals to make informed decisions about their care. Remember, the journey is not always easy, but with access to reliable information and supportive care, you can navigate the path towards a healthier future.

Dr. Camel's Conclusion

PROP UP is a vital addition to the growing body of research on hepatitis C treatment. Its unique focus on patient-reported outcomes, coupled with its strong patient engagement component, will provide valuable insights into the real-world impact of these new therapies. This study serves as a reminder that in the grand desert of medical research, the voices of those directly affected by a condition are invaluable and must be included in the quest for improved care.

Date :
  1. Date Completed 2018-03-07
  2. Date Revised 2022-03-18
Further Info :

Pubmed ID

28342989

DOI: Digital Object Identifier

NIHMS869569

SNS
PICO Info
in preparation
Languages

English

Positive IndicatorAn AI analysis index that serves as a benchmark for how positive the results of the study are. Note that it is a benchmark and requires careful interpretation and consideration of different perspectives.

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