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Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation.

Author: AshwalGary, BossRenee D, DingYuanyuan, HendersonCarrie M, JabreNicholas A, RaisanenJessica C, SchrootenAnn, ShafferJennifer, ShipmanKelly J, ThomasAlex, VoHolly Hoa, WilfondBenjamin S

Journal ArticleAn article published in an academic or professional journal that reports original research or scholarly analysis.
Research Support, Non-U.S. Gov'tResearch funding provided by government agencies outside the United States.

Overview

Parents of children requiring tracheostomy and home ventilation often seek information from other parents who have faced similar decisions. This study explores the challenges of parent-to-parent communication and highlights the need for effective mechanisms to connect families for informed decision-making.
Paper Details　
Original Abstract of the Article :
The decision to initiate pediatric mechanical ventilation via tracheostomy ("home ventilation") is complex and parents often desire information from other parents who have faced this decision. However, parent-to-parent communication is challenging as it is difficult to connect new families to experi...See full text at original site
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引用元：
https://doi.org/10.1016/j.pec.2023.107855

データ提供：米国国立医学図書館（NLM）

Family-Reflections.com: Sharing Stories and Creating a Oasis of Support

The decision to initiate pediatric mechanical ventilation via tracheostomy, known as home ventilation, is a complex one for families. It's like navigating a challenging desert landscape, where there are many different paths to take and many unknowns to face. This article introduces Family-Reflections.com, a website designed to connect parents of children who require home ventilation, providing a platform for sharing experiences, information, and support.

Connecting Families: Building an Oasis of Support

Family-Reflections.com provides a valuable resource for families navigating the challenges of home ventilation. It's like finding a well-stocked oasis in the desert, offering water, shade, and a community of fellow travelers. The website aims to facilitate communication and support among families, creating a sense of belonging and shared understanding.

Finding Strength in Community: A Collective Journey

Family-Reflections.com is an important step in creating a more supportive environment for families facing the challenges of home ventilation. By connecting families and fostering open communication, it can help to alleviate the sense of isolation and empower families to navigate this difficult journey. It's like finding a group of travelers in the desert, joining forces to overcome obstacles and share the journey.

Dr.Camel's Conclusion

Family-Reflections.com provides a valuable oasis in the desert of pediatric home ventilation. It connects families, fosters communication, and offers a vital source of support and shared experiences. This website is a testament to the power of community and the importance of sharing our stories and experiences to help others navigate challenging journeys.

Date :
  1. Date Completed 2023-08-04
  2. Date Revised 2023-08-04
Further Info :

Pubmed ID

37348312

DOI: Digital Object Identifier

10.1016/j.pec.2023.107855

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PICO Info
in preparation
Languages

English

Positive IndicatorAn AI analysis index that serves as a benchmark for how positive the results of the study are. Note that it is a benchmark and requires careful interpretation and consideration of different perspectives.

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